Hemophilia and sexual health: results from the HERO and B-HERO-S studies
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Authors
Blamey, Greig
Buranahirun, Cathy
Buzzi, Andrea
Cooper, David L.
Cutter, Susan
Geraghty, Sue
Saad, Hossam
Yang, Renchi
Issue Date
2019-08-14
Type
Article
Language
en_US
Keywords
Male Sexual Health Questionnaire , Quality of Life , Sexual Relationships
Alternative Title
Abstract
Background:
Sexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia.
Methods:
To address this issue, the Hemophilia Experiences, Results and Opportunities (HERO) and the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) studies included questions from the Male Sexual Health Questionnaire (MSHQ).
Results:
Although these data were not statistically analyzed for comparisons between the 3 populations (HERO, HERO US only, and B-HERO-S), in general, participants in the HERO survey appeared to be more satisfied with their sexual relationship than participants in the B-HERO-S survey. In addition, many patients, especially those outside the United States, reported that they had not discussed sexual health with their doctor or other members of the hemophilia treatment center team. While the topic of sexual health has been infrequently explored in men with hemophilia, this is the first time it has been investigated in women with hemophilia.
Conclusion:
The results of these studies demonstrate that the impact of hemophilia extends to intimacy and suggest the need for large-scale studies in additional countries to explore further the factors associated with sexual health issues in people with hemophilia.
Description
Citation
Blamey, G., Buranahirun, C., Buzzi, A., Cooper, D. L., Cutter, S., Geraghty, S., Saad, H., & Yang, R. (2019). Hemophilia and sexual health: results from the HERO and B-HERO-S studies. Patient related outcome measures, 10, 243–255. https://doi.org/10.2147/PROM.S211339
Publisher
Patient Related Outcome Measures